--- title: Cystic Fibrosis Patient Funds Research to Beat Disease description: How one woman is accelerating the race to a cure for cystic fibrosis. canonical: https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/ author: Alexandra Sifferlin article:opinion: false article:content_tier: free article:published_time: 2016-01-07T19:08:11.000Z article:modified_time: 2026-02-22T13:52:59.595Z article:section: Health og:title: Woman Races to Find a Cure for Her Own Disease og:description: Emily Kramer-Golinkoff is taking on cystic fibrosis and racing against the clock og:url: https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/ og:site_name: TIME og:image: https://static.time.com/v3/assets/bltea6093859af6183b/blt95ad538b8004af08/69887812cd1bba6ee46fed33/emily-30.jpg?branch=production&width=3840&quality=75&auto=webp&crop=16:9 og:image:width: 1200 og:image:height: 675 og:image:alt: Emily Kramer-Golinkoff og:type: article twitter:card: summary_large_image twitter:title: Woman Races to Find a Cure for Her Own Disease twitter:description: Emily Kramer-Golinkoff is taking on cystic fibrosis and racing against the clock twitter:image: https://static.time.com/v3/assets/bltea6093859af6183b/blt95ad538b8004af08/69887812cd1bba6ee46fed33/emily-30.jpg?branch=production&width=3840&quality=75&auto=webp&crop=16:9 ---  # Woman Races to Find a Cure for Her Own Disease by [Alexandra Sifferlin](https://time.com/author/alexandra-sifferlin/) ## Alexandra Sifferlin Jan 7, 2016 7:08 PM UTC  Emily Kramer-Golinkoff Emily Kramer-GolinkoffCheyenne Gil by [Alexandra Sifferlin](https://time.com/author/alexandra-sifferlin/) ## Alexandra Sifferlin Jan 7, 2016 7:08 PM UTC One woman with cystic fibrosis is [working hard to help find a cure for the fatal disease](http://www.people.com/article/emily-kramer-golinkoff-cycstic-fybrosis-research). Emily Kramer-Golinkoff, 30, realized when she was 17 that she had reached the middle of her life. At the time, the life expectancy for someone with her condition was about 34 to 35\. Though there’s currently no cure, Kramer-Golinkoff is pushing progress forward through funding she’s securing via her nonprofit, [Emily’s Entourage](http://www.emilysentourage.org/). [As PEOPLE reports](http://www.people.com/article/emily-kramer-golinkoff-cycstic-fybrosis-research), she’s also donated “tens of thousands” of her own cells to labs conducting research on the disease, and developing drugs. Kramer-Golinkoff, who has a lung capacity of just 35% and requires significant medical attention, is trying to accelerate the race to a cure. [Read more at People](http://www.people.com/article/emily-kramer-golinkoff-cycstic-fybrosis-research) ```json [{"@context":"https://schema.org","@type":"NewsArticle","@id":"https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/","mainEntityOfPage":{"@type":"WebPage","@id":"https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/"},"headline":"Woman Races to Find a Cure for Her Own Disease","datePublished":"2016-01-07T19:08:11.000Z","dateModified":"2026-02-22T13:52:59.595Z","description":"Emily Kramer-Golinkoff is taking on cystic fibrosis and racing against the clock","url":"https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/","keywords":["Research"],"thumbnailUrl":"https://static.time.com/v3/assets/bltea6093859af6183b/blt95ad538b8004af08/69887812cd1bba6ee46fed33/emily-30.jpg?branch=production&width=1200&quality=75&auto=webp&crop=1200:675&height=675","author":[{"@type":"Person","name":"Alexandra Sifferlin","jobTitle":null,"url":"https://time.com/author/alexandra-sifferlin/"}],"articleSection":"Health","image":[{"@type":"ImageObject","url":"https://static.time.com/v3/assets/bltea6093859af6183b/blt95ad538b8004af08/69887812cd1bba6ee46fed33/emily-30.jpg?branch=production&width=1200&quality=75&auto=webp&crop=1200:675&height=675","width":1200,"height":675,"headline":"Emily Kramer-Golinkoff","caption":"Emily Kramer-Golinkoff","creditText":"Cheyenne Gil","representativeOfPage":true}],"publisher":{"@type":"Organization","name":"Time","url":"https://time.com/","logo":{"@type":"ImageObject","url":"https://time.com/images/logo.png","width":528,"height":156},"foundingDate":"March 3, 1923","sameAs":["https://www.facebook.com/time","https://www.instagram.com/time/?hl=en","https://twitter.com/time","https://www.pinterest.com/timemagazine"]}},{"@context":"https://schema.org","@type":"BreadcrumbList","itemListElement":[{"@type":"ListItem","position":1,"item":{"@id":"/section/health/","name":"Health"}},{"@type":"ListItem","position":2,"item":{"@id":"/tag/research/","name":"Research"}},{"@type":"ListItem","position":3,"item":{"@id":"https://time.com/4171677/cystic-fibrosis-research-emilys-entourage/","name":"Woman Races to Find a Cure for Her Own Disease"}}]}] ```