A young woman is taking to Instagram to open up about what it’s like to live with an auto-immune disorder like psoriasis: Ciena Rae Nelson showed a photo of herself in cover-up and a second photo with the saturation shifted so viewers could see her skin underneath the makeup: “Not everything is as bad as it looks, and sometimes things are actually much worse,” she wrote in the post.
Psoriasis is an autoimmune disease that leads to “raised, red, scaly patches to appear on the skin,” according to the National Psoriasis Foundation, which is dedicated to finding a cure for psoriasis.
Nelson told HelloGiggles that she wanted to offer support to other people struggling with the condition. “It’s hard to feel like a part of a community who can offer support […] when your disease is swept under the rug or hidden from the media,” she said.
She added that awareness is so important when it comes to an “invisible illness” like psoriasis: “People think I’m flaky (no pun intended) because I don’t want to go out last-minute, depending on how I’m feeling. They don’t understand that I have to judge it day by day and that they may not always see my disease but that doesn’t mean it doesn’t exist.”
See her full post below.
More Must-Reads from TIME
- Why Trump’s Message Worked on Latino Men
- What Trump’s Win Could Mean for Housing
- The 100 Must-Read Books of 2024
- Sleep Doctors Share the 1 Tip That’s Changed Their Lives
- Column: Let’s Bring Back Romance
- What It’s Like to Have Long COVID As a Kid
- FX’s Say Nothing Is the Must-Watch Political Thriller of 2024
- Merle Bombardieri Is Helping People Make the Baby Decision
Contact us at letters@time.com