Children with the disease typically die between the ages of 6 and 12
Celebrities are helping producer Gordon Gray and his wife Kristen raise money in their quest to find a cure for their daughters’ rare brain disease. Four-year-old Charlotte and younger sister Gwenyth, 2, were diagnosed with the neurodegenerative Batten disease. Typically, children with the disease—the symptoms of which include blindness and the loss of mobility—die between the ages of 6 and 12.
A variety of celebrities, including Mia Hamm, Channing and Jenna Dewan Tatum, January Jones, and Dwayne Johnson have already posted the request for donations to social media. Johnson wrote: “I’ve never asked for donations, but this one’s very close to my heart.” According to Deadline, more celebrities are expected to post.
“You’re looking at your very healthy vibrant children, who are loving life right now, who could potentially lose all of that joy in a very short time,” Kristen says in the video celebs have been posting. “So we have a very short window to try and save them.” The couple is hoping to raise about $10 million dollars for Batten research.
Gray is the producer of sports films such as The Rookie, Miracle, and Million Dollar Arm.