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---
title: Breast Cancer Awareness: Activism Before the Pink Ribbon
description: That breast cancer garners an impressive amount of social awareness is no accident; that is the result of decades of committed activism
canonical: https://time.com/4531239/breast-cancer-activism-history/
author: Sascha Cohen
article:opinion: false
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article:published_time: 2016-10-17T13:00:22.000Z
article:modified_time: 2026-08-04T07:41:58.273Z
article:section: History
og:title: This Is What Breast Cancer Awareness Looked Like Before the Pink Ribbon
og:description: That breast cancer garners an impressive amount of social awareness is no accident
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og:image:alt: First Lady Betty Ford
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twitter:title: This Is What Breast Cancer Awareness Looked Like Before the Pink Ribbon
twitter:description: That breast cancer garners an impressive amount of social awareness is no accident
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![](https://static.time.com/v3/assets/bltea6093859af6183b/blt5f2f34d3a3d668a4/6988aa17f887dc6f03e97ce6/betty-ford.jpeg?branch=production&width=1200&quality=75&auto=webp&crop=16:9)


# This Is What Breast Cancer Activism Looked Like Before the Pink Ribbon

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<!-- video src="https://cdn.jwplayer.com/manifests/qPQnIqEX.m3u8" -->
## Video: Choosing to Wait: A New Approach to Treating Breast Cancer at Its Earliest Stages

[Watch (HLS stream): Choosing to Wait: A New Approach to Treating Breast Cancer at Its Earliest Stages](https://cdn.jwplayer.com/manifests/qPQnIqEX.m3u8) (5:56)

![Choosing to Wait: A New Approach to Treating Breast Cancer at Its Earliest Stages](https://cdn.jwplayer.com/v2/media/qPQnIqEX/poster.jpg?width=720)

_Published 2015-10-01. Colletti, 60, was diagnosed with ductal carcinoma in situ (DCIS), also known as Stage 0 breast cancer, in April 2014. But rather than immediately having surgery, Colletti opted for a new form of alternative treatment: active surveillance._


by 

[Sascha Cohen](https://time.com/author/sascha-cohen/)


## Sascha Cohen


Oct 17, 2016 1:00 PM UTC

![Former First Lady Betty Ford Dies](https://static.time.com/v3/assets/bltea6093859af6183b/blt5f2f34d3a3d668a4/6988aa17f887dc6f03e97ce6/betty-ford.jpeg?branch=production&width=1200&quality=75&auto=webp&crop=3:2)

First lady Betty Ford, right, answers questions from the press prior to her tour of the Guttman Institute for Early Detection of Breast Cancer in New York City on Nov. 7, 1975.

First lady Betty Ford, right, answers questions from the press prior to her tour of the Guttman Institute for Early Detection of Breast Cancer in New York City on Nov. 7, 1975. MCT / Getty Images

by 

[Sascha Cohen](https://time.com/author/sascha-cohen/)


## Sascha Cohen


Oct 17, 2016 1:00 PM UTC

Breast Cancer Awareness month comes every October, and the display of pink ribbons is hard to miss. The contemporary fight against breast cancer has succeeded in promoting visibility of the disease, in honoring those who have died from it and in giving [patients resources](http://www.lbbc.org) for navigating their diagnosis, as well as a sense of hope for the future. But this did not happen overnight, nor did it originate with the pink ribbon campaign conceived in the early 1990s.

That breast cancer garners an impressive amount of social awareness is no accident; it is the result of decades of committed activism beginning in the 1970s, and was driven in large part by the spirit of the women’s liberation movement. Until this point in time, breast cancer was an “unspeakable” condition that women experienced privately and silently, with shame rather than social support. It took the acts of individual women speaking out about cancer, as well as feminist organizing that targeted the relationship between female patients and the male-dominated medical establishment, for the issue to go public and become less stigmatized.


During the 1970s, second wave feminism helped spawn the women’s health movement, which was meant to empower women to demand greater knowledge about their own bodies, and freedom to take charge of their reproductive and sexual health. Feminists challenged what they saw as a common power dynamic in medicine in which patronizing male doctors claimed authority over passive female patients by dictating their care and denying them participation in medical decision making. This led to the publication of _Our Bodies, Ourselves_ by the Boston Women’s Health Collective in 1973, as well as the creation of educational projects to teach women how to examine themselves and advocate for their own healthcare needs.

The lack of choices and autonomy for women was particularly evident with issues like childbirth, sterilization and abortion, but it also applied to breast cancer. Since about 1900, a woman suspected of having breast cancer would undergo a “one step” operation. A surgeon would perform a biopsy along with a radical mastectomy, and the patient would typically wake up with her breasts, chest muscles and lymph nodes entirely removed, regardless of the size or characteristics of her tumor, or her personal wishes.


[_Get your history fix in one place: sign up for the weekly TIME History newsletter_](http://time.com/newsletter)

One of the first women to protest this standard of care was journalist Rose Kushner, who discovered she had a breast lump in 1974, at the age of 45\. Kushner insisted on a diagnostic biopsy followed by a modified mastectomy. “No man is going to make another impotent while he’s asleep without his permission, but there’s no hesitation if it’s a woman’s breast,” Kushner pointed out, echoing the reigning feminist position on sexist double standards in medicine. In 1975, she published _Why Me? What Every Woman Should Know About Breast Cancer to Save Her Life_.

Kushner’s ideas were initially rejected by cancer experts – one called her book a “piece of garbage” – but over time they became common practice, as research proved that women with early-stage disease could safely conserve more of their breast tissue. Kushner was eventually appointed as the first member of the National Cancer Advisory Board by President Jimmy Carter.


Several prominent women followed Kushner’s lead in speaking out about breast cancer during the decade. When she was 56 years old and about to become the First Lady, Betty Ford had a mastectomy after being diagnosed with the disease. She held a press conference in September of 1974, sharing the details of her story with the public.s As a result, millions of women examined themselves and scheduled screenings with their doctors, which led to a spike in reported incidents of breast cancer known as the [“Betty Ford blip.”](http://content.time.com/time/nation/article/0,8599,2082229-3,00.html) One such woman was Happy Rockefeller, wife of Vice President designate Nelson Rockefeller, who discovered her own malignant lump just two weeks later.

As TIME [explained](http://content.time.com/time/magazine/article/0,9171,945077,00.html), Ford and Rockefeller’s candidness helped many others confront “a little understood disease that was once discussed only in whispers.” Other notable women who came forward about their experiences with breast cancer in the 1970s included writer Babette Rosmond, actor Shirley Temple Black, chef Julia Child and NBC news correspondent Betty Rollin.


During the 1980s, AIDS eclipsed cancer as the major health crisis commanding national attention. AIDS activists became known for their confrontational style of politics, as groups like ACT-UP staged theatrical guerilla street protests in order to lobby for government research money. Their use of symbolism, in the form of a red ribbon, and their demands for increased federal funding influenced the next wave of breast cancer activism.

The [pink ribbon](http://pinkribbon.org/about/history/) became a symbol of breast cancer awareness as the result of efforts by _Self Magazine_, the cosmetics industry and the Susan G. Komen foundation in the early 1990s. The concept was first inspired by breast cancer patient [Charlotte Hayley](http://www.bcaction.org/2014/06/24/in-memoriam-charlotte-haley-creator-of-the-first-peach-breast-cancer-ribbon/), who individually distributed thousands of peach colored ribbons in her community, along with cards that encouraged funding for cancer prevention. When representatives from Estee Lauder and _Self_ expressed interest in her idea, Hayley turned them away because she was worried about the cause becoming commercialized—so they changed the color of the ribbon from peach to pink. The [first pink ribbons](http://ww5.komen.org/uploadedfiles/content%5Fbinaries/the%5Fpink%5Fribbon%5Fstory.pdf) were handed out at the 1991 Susan G. Komen Race for the Cure in New York City, the same year that saw the founding of the [National Breast Cancer Coalition](http://content.time.com/time/magazine/article/0,9171,979471,00.html).


Today, activists are pivoting their focus from awareness and early detection towards saving the lives of patients who have progressed to advanced stage IV disease, or [metastatic](http://www.metavivor.org/research/) breast cancer. And breast cancer activism has evolved from individual patients voicing their own experiences, to the formation of community support groups for cancer survivors, to political organizing for a cure. It has grown from a small grassroots movement to a widespread network of professional advocacy. [Critics](http://thinkbeforeyoupink.org/resources/before-you-buy/) point out that, along the way, the struggle against breast cancer has been exploited by companies co-opting the pink ribbon to advertise their own products or bolster their image. But before all of that, it was a movement about giving women the courage to speak openly about their bodies, and the agency to decide their preferred course of treatment when faced with a serious illness.

![The Long View](https://static.time.com/v3/assets/bltea6093859af6183b/bltba69b63328b676c3/69877f058e06012db745a448/long-view.png?branch=production&width=828&quality=75&auto=webp)


**_Historians explain how the past informs the present_**

_Sascha Cohen is a PhD candidate in the history department at Brandeis University_ _, specializing in the social and cultural history of 1970s America._


## Transcript

[ MUSIC ] One of the best things about my job is that I see patients who have a potentially lethal diagnosis and I'm able to be part of what allows them to be cured of their disease. The flip side is that one of the least rewarding experiences I have Of. And when I see a patient who is so fearful and so not at peace with her own body that she feels that she has to do extraordinary things to be free of her anxiety of breast cancer. [ MUSIC ] My daughter's initial reaction was, [ MUSIC ] Mom, if it was me I'd take it out. You just get rid of it. My husband and I did a ton of research, and we reviewed studies, and all the information out there, and decided that really we don't have to have surgery.

That it's not life- threatening, and I'll probably die from something else. [ MUSIC ] [ BLANK_AUDIO ] So if you would If you felt a nodule or [ INAUDIBLE ] I'm fortunate to be on the early side of things where most of the patients I see have very early, very treatable problems and I think that's how I got interested in DCIS, because of all the so- called cancers that we diagnose now, DCIS is the very earliest form. [ MUSIC ] Active surveillance is very new. And for many people, both on the physician's side and the patient's side, it's a scary proposition. I'm certainly not condoning it for everyone.

I'm not recommending that everyone with DCIS follow a path of active surveillance. But I think it should be considered in the context of all the options that patients have. All of us have different comfort levels of how far we're willing to go to be sure we don't die of this and that other disease. But we all die of something. And we can't prevent everything. [ MUSIC ] So in April of 2014 I was diagnosed with DCIS. When they gave me the diagnosis I initially felt a lot of dread, got sick to my stomach and just thought oh no so what is this going to lead to. My daughter's initial reaction was, mom, if it was me, I'd take it out.

And that was initially how she felt until we discussed it. And when we talked about the risks of surgery and radiation treatments, and some of the things that can happen with that, and the fact that these are pre- cancerous cells that may just sit there and never do anything. She came around. So, DCIS stands for ductal carcinoma in situ. And the in situ part is that the cells, the abnormal cells are contained within the ducts of the breast Once the cells break out of the ducts its called an invasive cancer, and those are the cancers that can spread to the lymph nodes and can spread to other parts of the body and eventually cause mortality.

[ SOUND ] There have been a couple of very important studies that have been published lately which have shown that for the very low risk DCIS Whether you ever operate on them, whether you do a lumpectomy or whether you do a mastectomy, the patients are equally likely to not die of breast cancer. So removing both your breasts at that phase really doesn't help a woman to live longer. And I feel that for some of those patients They see mastectomy as being a way to rid themselves of anxiety. And that makes me sad. I think there are much better ways to reduce anxiety than to do a pretty major operation after which you're never really going to be the same.

And the side effects that patients have in terms of discomfort with themselves. Never feeling like they're whole again. A lot of the work that I do in clinic is being with patients at probably one of the most vulnerable and scary times of their lives. And to be part of that process and to see patients through that is incredibly rewarding. The initial fear that you have I think is just because you don't know what's going to happen, but you know if you read the studies And you look at the information out there, I don't feel afraid at all. I feel great about my decision. If options were given to women, more women would choose active surveillance, but because there's no options out there, people don't know to even ask.

Ask. [ MUSIC ] [ BLANK_AUDIO ]

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