--- title: Organ Donation: What It's Like To Work in the Body Donation Industry description: I had to ask next-of-kin uncomfortable questions about the deceased canonical: https://time.com/3998933/body-organ-donation/ author: TIME article:opinion: true article:content_tier: free article:published_time: 2015-08-15T13:00:59.000Z article:modified_time: 2026-08-04T08:06:35.824Z article:section: Ideas og:title: What It's Like To Work in the Body Donation Industry og:description: For 3 years, I had to ask next-of-kin uncomfortable questions about the deceased og:url: https://time.com/3998933/body-organ-donation/ og:site_name: TIME og:image: https://static.time.com/v3/assets/bltea6093859af6183b/bltde093bcdab65f2d0/6988d9b9bc6cfc69913e2a3c/time-logo.jpg?branch=production og:image:width: 1200 og:image:height: 675 og:image:alt: TIME og:type: article twitter:card: summary_large_image twitter:title: What It's Like To Work in the Body Donation Industry twitter:description: For 3 years, I had to ask next-of-kin uncomfortable questions about the deceased twitter:image: https://static.time.com/v3/assets/bltea6093859af6183b/bltde093bcdab65f2d0/6988d9b9bc6cfc69913e2a3c/time-logo.jpg?branch=production --- # What It's Like To Work in the Body Donation Industry > Sponsored content. 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A paid TIME subscription is separate and available at time.com/subscribe-agent. ### Sources * TIME Newsletters: [time.com/newsletters](/c/time-nl-inside-2026q3/newsletters?i=96f10c09-bca1-4b34-bbcf-535c9c493c88&cr=time-nl-inside-2026q3-v1) ## Video: Inside The Operating Room During Awake Surgery [Watch (HLS stream): Inside The Operating Room During Awake Surgery](https://cdn.jwplayer.com/manifests/lyJruvm0.m3u8) (4:57)  _Published 2015-03-02. Brittany Capone is having a benign tumor removed from her brain and because it is so close to her speech center, surgeons will keep her awake and talk to her during the procedure_ by [Whitney M. Woodworth / Zocalo Public Square](https://time.com/author/zocalo-public-square/) ## Whitney M. Woodworth / Zocalo Public Square Aug 15, 2015 1:00 PM UTC by [Whitney M. Woodworth / Zocalo Public Square](https://time.com/author/zocalo-public-square/) ## Whitney M. Woodworth / Zocalo Public Square Aug 15, 2015 1:00 PM UTC For over three years, I thought about death every day. This wasn’t some morbid obsession. It was my job. A growing number of senior citizens—both permanent residents and part-time “snowbirds”—have settled in neighborhoods and mobile home parks across Phoenix, Arizona. All of these out-of-state transplants and seniors have created a growing demand for alternatives to traditional funerals. When I was 23, I started working for one of several whole-body donation organizations that serve the region. When someone dies, his or her family has several options for the body: a viewing and burial, cremation, embalming, or donation. Donating tissue, like organs, corneas, and skin, can also take place. My time in the whole body donation industry began on Craigslist. The help wanted ad didn’t list the organization’s name. When my future boss called to set up an interview, I thought she was a telemarketer. I could’ve hung up then, missed the opportunity, and been none the wiser about the death industry. Instead, I stayed on the phone, and she ended up hiring me for the receptionist position. I answered phones, typed up letters, and ran to the post office. It was a normal office job, except for the cadavers less than 100 feet from my desk, sealed away in the laboratory. Soon I was promoted and began taking “notification of death” calls. Some people signed up to donate their bodies to science. Family members or a hospice nurse called to inform me of the donor’s passing, and I arranged for mortuary transportation. Other times, people called in dazed. Their father or mother or sister or spouse had died, they told me, and they didn’t know what to do. I couldn’t do much. I couldn’t undo their loved one’s death or say something wise to make everything better. But I could give them a to-do list: call this person, sign this, fax this, and answer these questions. It was an industry I hardly knew existed until I was part of it. Soon, I started picking up on references to donation on television shows like _Bones_ and _Law & Order: SVU_. The storylines usually involved a nefarious character in a suit, stolen body parts, or a funeral home with a hidden autopsy suite. These plotlines are not baseless. The reputation of the body- and tissue-donation industry as a whole has been damaged by the actions of dishonest hospitals, funeral homes, and doctors. Less than a decade ago, the CEO of a tissue recovery firm was arrested for selling illegally harvested body parts. Funeral homes, donation companies, and hospitals have also been exposed for forging consent forms and unlawfully obtaining tissue. In 2013, I watched as FBI vans and news helicopters swarmed a nearby tissue donation firm. Our phones began ringing off the hook. I assured panicked callers that no, that was not our organization on the television, and that yes, we could help with arrangements for their loved ones. I feel lucky to have worked for an ethical business in such a loosely regulated industry. My supervisor required us to inform people fully of the nature of full body donation, answer all questions, and only proceed with witnessed, written consent. Not all religions and communities support donation. I made it clear that people should only donate if they were 100 percent comfortable with the process. Whole body or anatomical donation places organs, body parts, and other tissues with medical facilities. The tissue is then used for training doctors, developing new treatments and medications, and researching diseases, from breast cancer to dementia. What is not used for research is cremated and returned to the family. Death is expensive. Traditional funerals cost upwards of $6,000 and even simple services can force families to choose between paying rent or paying for a cremation. The organization where I worked covered the cost of mortuary transportation, cremation, and the return of ashes to the family. We took care of all the necessary paperwork and tried to whittle down any other costs. Usually families were just left with paying the county for a death certificate, which are about $20 apiece. Some people decided to donate because of financial hardship. For most people, the decision to donate was not a financial choice. I saw people who had suffered for years from cancer sign up for donation because they thought it was one final way to fight the disease. Sometimes, especially when the person died in hospice, a nurse or social worker would step up and help the family plan for a funeral home or alternative service. Other times, it was a family member who called. They found us in a Google search or were referred by a friend and were fumbling through a bewildering situation. If the deceased was registered to donate, I started the transportation and donation process immediately. If they were not, I ran through a list of questions. Depending on the answers, I either carefully told the next-of-kin that their loved one did not qualify for whole body donation or informed them that they were accepted. Hepatitis C or HIV/AIDS rules out donation of any kind. The majority of my workday consisted of filling out medical questionnaires. I called the family sometimes within hours of the passing and asked questions ranging from routine medical questions to intimate social history. As an introverted child and teen, I was too shy to call in a pizza delivery order. In this job, I was on the phone calmly inquiring about drug use, tattoos, and sexually transmitted diseases. With the phone cradled on my shoulder, I frantically typed and Googled unfamiliar medical conditions. I memorized the correct spellings of aneurysm, Levothyroxine and myelodysplastic syndrome. The most surreal part of the job was when the donation was done, and I personally delivered the ashes back to the family. I logged thousands of miles on my VW station wagon. The other coordinator and I drove so much the owners eventually bought a company car that was much nicer than either of our vehicles. I traveled to every corner of the valley to multi-million dollar homes, gated suburbs, and rusted trailer parks. Some days were good. The families were in mourning but thanked me profusely. I could tell they were content with their decision. People invited me into their living rooms. They showed me photos of their loved ones and detailed their plans to spread the ashes on the beach or in the forest or in the Colorado River. Other days, not so much. I visited hoarders with houses so crammed with card tables, boxes, and cat food that I had to come in through the garage. I delivered to homes in the empty stretches of Apache Junction that gave off a distinct meth house vibe, complete with cardboard jammed over the windowpanes and a television set smashed on the lawn. After delivering the ashes of a 20-year-old to his grieving mother, I sat in the car for 20 minutes and tried to shake off a wave of sadness. People expressed shock to see me, a person in her 20s, on their doorstep, holding their loved one’s ashes. They remarked on how young I was. (I think they expected a gaunt-faced, middle-aged man in a gloomy suit.) “How’d you end up in with _this_ kind of job?” they’d ask. The death industry is not an easy business to work in. You carry the sadness and anger of your work day home with you. Sometimes you have nightmares. After reading too many medical examiner’s reports, you create a mental list of ways you do _not_ want to die. I still didn’t come any closer to understanding death. I couldn’t ever define what I wanted after my death, but I realized that talking about it was the best way to prepare for it. Ignoring death just leaves empty spaces and gaps for the survivors to guess their way through. One thing that struck me was how the reports always describe the state of cleanliness of a residence where someone dies. Now I find myself making a point of keeping my home neat, because you never know when death might visit. And I’d like to avoid the judgment of the medical examiner. My time in the industry gave me endless anecdotes and cautionary tales. With my boss’s encouragement, I re-enrolled in school and accepted a journalism internship. I left the job after three years, but felt a decade older. I knew my time in the death industry was over. _Whitney M. Woodworth, an Arizona State University Cronkite Sustainability Fellow at Zócalo Public Square, is a senior at ASU_ ## Transcript Are you pretty comfortable dear? The first time I found out I had a tumor, I was 20. Where do you live dear? I would go get something and when I got there, I wouldn't know what I was going to get. Do you know where you are? I couldn't remember things good, so I was nervous. So that it's crazy. [ MUSIC ] I just want water. I first heard about the surgery, where I would have to be awake, about a month ago. It's not a matter of being awake or not. It's just the whole thing about having surgery of the brain period, is going to be, like, the hardest thing. Very nervous. I'm a nervous guy. [ LAUGH ] It's going to be the longest four hours of our life. We just hope this all turns out good, that's all. No. You did not get me a teddy bear. What am I going to do with this thing? [ LAUGH ] [ INAUDIBLE ] [ APPLAUSE ] [ LAUGH ] Brit baby. What? A few more hours it'll be all over. Thank god, I'm tired. So how do you guys all feel? We want it to be over. That's all. If they would let me scrub up, I would love to come in the operating room. I would love it. The idea is to take out the tumor and leave the brains behind. [ MUSIC ] It's sort of a misnomer. You're not awake for the entire procedure. For most of the surgery, you're gonna be quite deeply sedated so that you won't be aware [ CROSSTALK ] It's not terribly traumatic for patients. I always reassure them that we're gonna sedate them. We're not gonna put them to sleep except during the opening and the closing. You're going to be really comfortable. You're going to be surprised. One of the most important people in the room is anesthesiologists. No smiling, no laughing. If you go to sleep smiling you wake up smiling. [ LAUGH ] The art part of this is tailoring those medications to the point where the patient is sufficiently sedated that they tolerate the procedure. Timeout, this is. Brittany Capone, she has a left posterior temporal tumor. Everybody agree we're on the left side? Yup. [ MUSIC ] [ INAUDIBLE ] Left sided tumors we we're worried about speech. And it includes both motor speech and receptive speech. Name a word that starts with B. Brittany. Brittany, there ya go. You can hear the sort of a cadence the patient gets into. And if you notice any hesitancy we can, we could hear it instantaneously. Name something you paint with. Paint brush. That's. The most memorable ones now are, are the, the patients who, who carry on interesting conversations with us during surgery. No fennel. I like fennel too. The whole thing is pretty surreal actually. But reassuring all that's reassuring to us. What time is it? It's ten o'clock. You got a date? You got a date? Do I get to see the tumor? No. Not really. It's going to be hard for you to see it. Are you going to put me back to sleep? Very soon, yes. After the scalp is closed and the head is bandaged, we turn off all the medication. And the patient will wake up. Brittany. Brittany. Brittany. Can you open your eyes? Brittany? It's really, quite amazing how quickly they wake up and how bright and alert they are, after several hours of neuro surgery. Show me your teeth. Big smile. Smile, smile, smile. Good. Stick out your tongue. Good. Craniotomy is not a terribly painful operation. It's not like a chest surgery or an abdominal surgery. Can you lift this leg up? The next day you're walking on the ward after a craniotomy. Try to touch my hand here. There's just not much to hurt in the brain. That's the good thing. Today's a sunny day in New York city. [ MUSIC ] Today is a sunny day in New York City. Mmhm. 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